saturday 8/10/2013

Ava has even more toys in her crib today. Music therapy came and sang to her for 30 minutes yesterday and child life came and played with her the day before that.  Last night and today the nurses have put her back on a little bit of flow, but just room air, from the nasal cannula. She was just working a little harder to keep her oxygen saturations in the high 80's/low 90's. A bunch of labs were drawn and cardiology was consulted. Cardiology said that they wanted her acceptable oxygen range to be 87% to 95% and they did not want a nasal cannula on her so there wasn't a risk of "flooding the lungs" which I don't totally understand. It sounded like they would try to do surgery later this week but it is hard to set anything in stone until the workweek starts monday. She had a desaturation into the low 70's tonight while I was holding her and I talked to the NP on shift about making sure that phenylephrine was available at the bedside so that a nurse could give it fast if need be. This was something Dr. Yost had made sure was available while he was on shift a few weeks ago, but it has since not been a concern. The NP said they'd discuss it in rounds tomorrow. Ava also threw up her vitamins today. We don't know why. She has been on them for 4 days. If she throws up again, I am going to play the mommy card, if I have to, and refuse vitamins..even a divided dose, because I don't want anything to stand in the way of her surgery coming up. All she needs is another pneumonia to put surgery off for another month.