Ava is not doing so well. She is septic- blood infection, which is not good. It is most likely due to the perforation that occurred when dialating the esophagus on Thursday. She is extremely lethargic. Her "infection blood lab draws" aren't very good. She is on 4 broad spectrum antibiotics total now. She is still in a lot of pain, but the nurse practitioner wants to back off on the morphine because he is worried about her respiratory status (which can slow down with morphine). He says that she is doing worse now than during the day. She is having pretty severe apnea episodes (stop breathing) so they have added a rate on the CpAP machine which forces breaths..but he called to tell me they might intubate her tonight to take over her breathing. Surgery wants him to wait until they absolutely have to because it is hard on the esophagus to put a tube down there...which is what we've been trying to fix with all the dialations. So he says if they do intubate her tonight it will be emergent, and that is why he is calling me now so its not a surprise. Not Cool- Need prayers- As usual.
1am. I went to see Ava. I found that she had desated earlier to 18% !! They had to " bag her" with oxygen earlier. She has been switched to a 1:1 staffing ratio, so she has her own nurse to make sure she keeps breathing- This is in an effort to avoid intubation, to protect the esophagus. Any other baby would have been intubated by now. The nurse thought that the morphine might have been causing the apnea, so he dose was cut in half, but it can be given twice as often- every 2 hours instead of every 4. She's getting about 2 x-rays a day to watch her lungs. Scary stuff, man. Her poor little eyes are swollen shut now.
Amber praying for sweet baby Ava!!
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