saturday 8/31/2013

Mother's intuition was correct. Ava spiked a 103 fever last night and looked terrible this morning. No one had called Shaun so he found out when he went in this morning. She got a full work up today including a lumbar puncture to check for meningitis. She has a UTI. They stopped her feeds at 10am this morning because she had been retching. Since it is a UTI we got her restarted on 1/3 feeds when I visited tonight. It will help her sleep better. She has significantly perked up since the antibiotics have been running through. UTIs are going to be a major concern for her for the next 2 years until she can have urology and plastic surgery reconstruct her genital region. The urethra needs to be moved forward about 1.5 centimeters. Shaun had a rough time the last 2 days, especially since I was camping with the kiddos with no cell phone service. There are a lot of little details but I am just too exhausted to stay up any longer.