thursday 5/30/2013

uneventful. Ava is completely off the Clonadine now. She has the same number of tremors with the same intensity with or without the Clonadine, so it was just better to get rid of the pointless med. Her oxygen has been weaned down to a flow rate of 0.1. She is on room air, which is 21% oxygen-and has been for some time. The nurse practitioner from integrative medicine came and met with Ava and I and she taught me infant massage with the Chinese medicine principals. She also left a bottle of coconut oil just for Ava. They will not let us use any essential oils however, in case anyone was wondering.