Tuesday, May 14, 2013
tuesday 5/14/2013
got to hold Ava for about 40 minutes. the child life center on the 3rd floor will watch my kids for exactly 45 minutes, so its a tad stressful to get all 3 over to the hospital for a measly 45 minutes..but it is DEFINITELY better than nothing. she just slept like a rock for the whole 40 minutes. the chaplain volunteers stopped by and prayed for her. they rescheduled Ava's esophagus dialation 3 times today...so as of now it is scheduled for may 23rd, but i wouldn't be surprised if it were moved again. she still has the tremors occasioinally. i'm not really sure the clonadine is doing much.
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I remember taking mysiblings to the Child Life Center...they had great intentions...but they loved their rules. I am glad you got to hold her for a little while though! She is beautiful, and my family is praying for your sweet Ava, and for the sanity and well being of your family! Stay strong mama:)
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